Objectives

The objectives of Renal Registry Sri Lanka are

  • To establish a sustainable renal registry (which is a highly validated, entirely inclusive dataset and robust electronic database) that integrates the facilities of the Ministry of Health and the Provincial health system
  • To track the outcome of patients with renal disease attending renal clinics and hospitals
  • To contribute data to allow for national and international comparisons and benchmarking vis renal registries in developed countries such as the ANZDATA of Australia and New Zealand, UK Renal Registry (UKRR), European Renal Registry (ERA-EDTA RR) and UNited States Renal Data System
  • To encourage and facilitate data use to aid research and practice evaluation and development at regional and national level
  • To contribute to professional development of multidisciplinary health care professionals of renal medicine in Sri Lanka
  • To form a focal point for collaborations with regional and global centres of excellence
  • To promote equity of access and of quality of care for renal care across Sri Lanka

Benefits of Renal Registry Sri Lanka are

  • Availability of a information of patients with chronic kidney disease and other renal diseases
  • Planning renal care services- Match demand vs. supply- Ministry and Provincial level by
    • Planning and allocation of new dialysis beds
    • Planning and allocation of equipment
    • Planning and allocation of expensive medications, including immunosuppresants
    • Planning and allocate Staffing – Drs/ Nurses/ allied health professionals
  • Resource management- during disaster management or national/regional emergency
  • Improvemnt of patient care by
    • Patient care feedeback system with regional and national data
    • Improvement in the quality of services provided by renal units
    • Utilise scarce resources to improve patient outcomes
  • Capacity building by
    • Facilitate training for hospital staff- Doctors/Nurses etc
    • Development of clinical renal epidemiology
    • Promotion of local and national level audit
  • Collaborations among specialties: Nephrologists/ Physicians/ Paediatric Nephrologists/ Academics etc
  • Research and human resource development
  • Improving the quality of services provided by hospitals for renal care
  • Better utilization of dialysis/renal unit beds
  • Ability to highlight variations /deficiencies in resources